Hi guys,
The open letter on the home page and the discussion board was provided to notify members and visitors of this site of our current financial needs. I appreciate that everyone who reads this letter will have differing views and feelings about it.
I want to talk with you about our programs and funding. Ken did a great job explaining how the board and other activities work.
Conferences
More than 450 persons registered for the 2001 NY conference. This was our most financially successful conference ever. The profits from this conference enabled us to purchase this discussion board, our chat room and underwrite retreats for survivors.
This years conference was not financially successful. I was there and the board met several times for very long hours beginning the planning for our recovery.
We are dependant upon conference profits to fund us until we can develop an organization that will attract the attention of foundations and other sources.
Retreats
Like this website our retreats are not profitable programs. Our team of facilitators has never been paid for their participation or the countless hours needed to find facilities and plan safe and healing retreats. In addition, they have sacrificed income and time away from professional endeavors to make these retreats possible. The decision was made to subsidize these retreats in hopes that eventually they would pay for themselves. This hasnt happened yet, but we continue to provide what we believe is our most important program for our members and other survivors. You dont have to be a member of MS to attend our retreats.
This web site.
This site began in 1993. The costs to host it came from individuals at that time. No one associated with this site has ever received any compensation and yet thousands of volunteer hours are donated every year to maintain and provide new services for our users. The cost to host this site and provide this discussion board and our chat room are derived from profits of past conferences.
By now Im sure you appreciate that conference profits are our most valuable income source. All of our programs are funded by conference profits. None of them are self-sufficient. We do not charge for access to the web site. We price our conference and retreat fees to recover costs as much as possible and to make them as affordable as we can.
I believe we are not threatening to take anything away. We are trying to survive. We do not have the operating capitol to fund MS or our programs next year. You may ask, Why not? Whos in charge? How did we allow this to happen?. Frankly, I would have questions to. The answers are at once complex and simple, but more importantly, we have fearlessly looked for ours and others mistakes and have taken steps to prevent them from re-occurring.
Fellas, our letter is in no way a threat. I believe it is an accurate account of the current status of MS. Nothing more.
The future.
Are we going to allow MS to disappear? No. And how do we propose to do this?
We have asked for financial support.
We are negotiating with our debtors.
We have retained professional help.
We posted our letter on this web site and because we have done this, new and exciting opportunities have presented themselves and we are responding to them. Will these opportunities be enough? I dont know. Are we going to place our future in them? No. We will continue to seek answers. The only thing I do know is that if we survivors ignore our needs then its foolishness to believe others will help us.
Look at what you have accomplished. 26,000 voices have broken the silence on this very forum! I remember the excitement I felt when I first met another survivor online. I know how important this forum and MS is to all of us. Its just as important to my fellow board members as it is to you.
I made a very modest contribution and I felt empowered by the opportunity to be a part of the solution.
You are important to our future because you are our future. Your voice is priceless. You can help us ensure that you and those who follow us will always have this opportunity to share, support each other and destroy the myths of our existence. I will never surrender and MS needs your financial help if you can provide it. Its that simpleat least for me.
Fred Tolson
Survivor
President-Elect
Curmudgeon